Patients and families may find the following resources useful.
Australian Cancer Trials website
The Australian Cancer Trials website is a free information service that displays the latest clinical trials in cancer care, including trials that are currently recruiting new participants. This website is for anyone affected by cancer … whether you, your friend or family member. Cancer specialists too will find this an invaluable resource to use with their patients. Australian Cancer Trials aims to assist you, with your cancer specialist, make decisions about your cancer care options, including clinical trials.
The website is available at http://www.australiancancertrials.gov.au/.
Cancer Australia Consumer Learning website
The Consumer Learning website is designed to enhance consumer knowledge and confidence to participate in cancer research and clinical trials. The website contains short online learning modules and video presentations to guide consumers who are seeking to participate in clinical trials research.
The website is available at http://consumerlearning.canceraustralia.gov.au/.
Adult gliomas for patients and families
The information booklet, Adult Gliomas (astrocytomas and oligodendrogliomas): a guide for patients and their families , was officially launched at the Cancer Institute NSW Brain Tumour Support and Education Forum in Sydney on Friday 13 May, 2011 by the Chair of the Guidelines working party, Professor Michael Barton.
This booklet provides important information on all aspects of the patient experience for those diagnosed with a brain tumour and their families and friends, including sections on symptoms, testing and diagnosis, and specific information on treatments for some of the most common tumour types. In addition, it gives helpful information on participating in clinical trials , as well as excellent sections covering whole-person care during the course of treatment and follow up. Valuable chapters on rehabilitiation and palliative care have also been included.
Understanding Brain Cancer: support videos
A brain cancer diagnosis is quite overwhelming. Cancer Council has developed a comprehensive set of video modules for people affected by brain cancer. The complete DVD can be ordered by calling 13 11 20, and the individual modules can be viewed here: http://www.cancercouncil.com.au/50913/get-informed/about/about-cancer/understanding-brain-cancer-support-videos/?pp=32262. The module content spans the whole brain cancer journey, from symptoms and diagnosis onwards. Remember that only some modules will be relevant to an individual’s stage in this journey – ensure that people move at their own pace.
The Understanding Brain Cancer modules were produced in consultation with the neuro-oncology medical community. This resource received funding from the Australian Government through Cancer Australia. For more information or support, call the Cancer Council Helpline on 13 11 20.
Brain Tumour Support and Education Forum
The Cancer Institute NSW hosted this free annual forum on 1 May 2013 which welcomed patients, their carers and health professionals. International keynote speaker Dr. James J. Vredenburgh joined local brain cancer professionals to present the latest information on research, treatments and services.
For further information and to view video coverage of past Forums: http://www.cancerinstitute.org.au/events/i/brain-tumour-support-and-education-forum-2013